Saturday, August 25, 2007

No extra hormones needed for our family!!

In an unrelated subject, shout out to my husband Dan! Hahaha! Just kidding. I won't even go there! Hello, hello everyone! In continuation of my last blog, I'm giving the lowdown on the endochronology appointment and I've 86ed the annoyed ranting about our appointments (My blog is much more pleasant after a couple beers!). There's actually nothing much to tell. Basically the endochronologist told us that Human Growth Hormone therapy was not an option for Owen. The studies that they have done on the effect that HGH has on dwarfs is not extensive and mostly done in some other country like Sweden or something. No offense to the Swedish but we'll stick to buying IKEA and not hormones from you. This was actually no big surprise to Dan and I as we really didn't believe that it HGH would be an option. Anyway, that really was the extent of our visit. My mother brought up an excellent point to me. She wondered why Owen, the boy with skeletal dysplasia has not been refered to an orthopedist. Hmm...good question mom! We have realized the need for a specialist for Owen so Tonya, I'll be hitting you up for Dr. Pauli's #! On the informative tip. Owen weights 15.9 oz and a far as his legnth, there is a little discrepancy. The nurse measured Owen at 23 1/4 inches which is what he measured at our ped's office at the 4 month check up. When we mentioned this and had them remeasure (twice), they discovered that one of Owen's legs is 3/4th of an inch longer than the other! A measurement taken using Owen's left leg measured at 24 inches. The doc didn't seem too concerned as it is something that could correct itself. It's just something to keep an eye on!

4 comments:

Renay said...

So great to get another update on Owen...sorry to hear work's rough.

Haven't heard from you about your email address yet. Would love to email you personally with Wag photo updates, etc.

Dr Pauli 608.262.2507

KJohnson24 said...

I found your blog through another site that a friend sent me. My son Cole, who is almost a month old now, was diagnosed at birth with Achondroplasia. It has been encouraging to read about your journey. Thank you for putting it out there.

-Katie

Anonymous said...

Sent it to you!!

Anonymous said...

OMG...Owen is SO CUTE...hope you all are doing well, we are...Bryan is getting to be SO MUCH FUN. Our fave thing to do together now is read..he is amazed by the pics in the books..I can't get enough of him.

Cheers,
Candi
YaYa to Bryan